We have raised $574 on PayPal, and checks are expected to start arriving at the Foundation any day now! I see Destiny's fundraising link on so many of my friends Facebook pages, and I want to hug each and every one of you for caring (and lighting the massive weight on my shoulders!
This is really happening, thanks to so many of you and you friends!
This morning we ordered the first and least expensive of the two necessary drugs, Clobazam, and it will arrive by next Monday afternoon. Since beginning the samples of Clobazam on Friday, seizures have decreased at least by half, and Desty has been super happy and spunky!
We are off to a great start!! I am truly awed by the generosity and compassion coming our way!
Destiny is scheduled to begin the main Dravet-specific drug, Stripentol, in a couple of weeks. Please help us push to have the money to make this transaction!
Please remember you can also make tax-deductible donations payable to Samaritan Foundation and mail to
The Samaritan Foundation
35 Redwood Road
North Salt Lake City, Ut 84054
This is a lot of money all together, but if just 40 people donated $20/month...the goal can be reached! Please spread the word!!
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